Reflections from a ‘RAD’ Workshop
Reflections from a ‘RAD’ Workshop By Kelly Muzyczka, Program Manager with the SCN8A Alliance I recently had the opportunity to join 25 other patient advocacy groups, in my role with the International SCN8A Alliance at the Rare Advocacy Development (RAD) Workshop—a two-and-a-half-day deep dive into the world of rare disease advocacy, with a special focus […]
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