Reflections from a ‘RAD’ Workshop By Kelly...
🎨💜SCN8A Community
Art Auction 💜🎨
An opportunity for everyone—families, friends, and supporters—to come together and create art to raise awareness for SCN8A.
We invite you to contribute original artwork to help raise awareness and support families affected by SCN8A. Whether it’s a drawing, painting, photograph, or another creative piece, your art can bring joy and hope.
Need inspiration?
These art pieces showcase different ways to create meaningful and unique artwork, whether through footprints, handprints, assisted drawing, or freeform creativity. Use these examples as a starting point to spark ideas and make something special!
Join Us for the SCN8A Community Art Auction!
The International SCN8A Alliance is excited to announce our upcoming Art Auction, an opportunity for the SCN8A community to come together, showcase creativity, and raise funds to improve the lives of those living with SCN8A. All proceeds will go directly toward funding for the first collaborative grant that supports the research priorities identified in the Global SCN8A Research Roadmap.
We’re inviting everyone connected to the SCN8A community — those with SCN8A, family members, artists, and supporters — to participate by contributing original art. Let’s make this event a celebration of creativity, connection, and compassion!
How You Can Participate
We welcome contributions of artwork  that can be easily mailed, including:
- Drawings
- Paintings
- Photography prints
- Handmade crafts
- Other lightweight and shippable creations
We also welcome personal services by artists including portrait of an SCN8A hero and professional photography session for an SCN8A family
This event is open to all ages! Whether it’s a child’s heartfelt creation or a professional piece, every contribution will help us get closer to improved quality of life and treatments for our loved ones with SCN8A.
Submission Details
- Entry Form:
- Fill out our Art Auction Entry Form.
- Artwork details (title, medium, artist, date).
- Provide details about your art to calculate shipping costs (dimensions, weight).
- Upload 2-4 photos of your piece.
- Shipping:
- Once your piece is sold, you will ship it directly to the buyer.
- The International SCN8A Alliance will cover shipping costs by providing prepaid shipping information. In case of extenuating circumstances, shipments may be delayed.Â
- Consent:
- By entering, you agree to allow the SCN8A Alliance to use images of your art for promotional purposes (e.g., social media, website).
Timeline
- Submission Period: Opens February 9, 2025 and closes March 15, 2025.
- Auction Dates: April 30, 2025 to May 9, 2025.
- Shipping Deadline: Sold items must be shipped within 10 days of receiving the buyer’s details. In case of extenuating circumstances, shipments may be delayed.Â
How the Auction Works
- All art will be displayed online during the auction period.
- Bidders from around the world will have the opportunity to bid on and win your amazing creations.
- 100% of proceeds will support SCN8A research.
Why Participate?
Your contribution helps us:
- Provide vital resources to families living with SCN8A.
- Fund important research initiatives.
- Raise awareness about SCN8A.
Who can participate?
- SCN8A Artists: All levels, share your creations!
- Artists: Create and donate your artwork (any medium).
- Photographers: Share your talent by contributing original prints or donating a family portrait session.
- Community Members: Donate a piece, spread the word, and participate in the auction by bidding!Â
Questions?
For more information, email us at [email protected].
Together, let’s make this a successful and inspiring event for the SCN8A community. Thank you for your support and generosity!
A Rare Feat in Footprints
A rare connection—two SCN8A warriors creating art together. With fewer than 1,000 known cases worldwide, this collaborative art is special.
Fearless Art, Fearless Spirit
A young SCN8A superhero brings their imagination to life with bold lines and brash creativity.
Two Worlds, One Canvas
A meeting that could never happen, penguin and polar bear—except in art, painted with hands that can’t grasp, feet that can’t stand, yet have left an indelible mark.
Hands Together, Creating
Not a single stroke made alone—hand over hand, guided but undeniably theirs. Art by the profoundly affected.
Mistletoes
Not just mistletoe—mistletoes! Festive art created one step at a time.
Collaborating For A Cure
Bringing Improved Quality of Life
As leaders in SCN8A research, we bring the latest data directly to families and doctors around the globe.

Advancing Research
The International SCN8A Registry is the most comprehensive repository of caregiver reported SN8A data. We also produced the first-ever Consensus on the Diagnosis and Treatment of SCN8A as a baseline standard of care.Â

Strategic Advocacy
Through our tireless efforts to bring awareness to SCN8A and other rare epilepsies we helped form and run the Epilepsies Action Network, working to raise awareness of and funding for the rare epilepsies.

Family First
We put SCN8A families first in all that we do. Our mission is to bring improved quality of life to everyone with SCN8A until we ultimately find a cure.

See The Good We've Done With Your Help!
Because of support from individuals and our industry partners, we are able to bring life changing information directly to SCN8A families.
SCN8A Family Meetings provide a place for families to connect, share tactics and strategies, and ask questions directly to renowned geneticist Dr. Michael Hammer.


Meet Our SCN8A Superheroes

News & Updates .
Exciting Progress in SCN8A Research: Positive Results from the Praxis EMBOLD Study!
Exciting Progress in SCN8A Research: Positive Initial...