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2024 International SCN8A Awareness Day Live Event – The State of SCN8A
February 9 @ 3:00 pm – 5:00 pm New York, NY
Every year on International SCN8A Awareness Day, February 9th, we host a live event to celebrate where we’ve been over the previous year and where we’re headed in the year(s) to come. With lots of mini-chats, we will discuss the State of SCN8A.
Join us to hear from a lineup of doctors, researchers, caregivers, and global leaders joining us to mark this important day.
On this day, we also remember Shay. February 9th, 2024 would mark the 28th birthday of Shay Emma Hammer, the first known person to have lived and died with SCN8A.
Please join us to mark this day, remember Shay and celebrate how we are a global community, collaborating for a cure.
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.