International SCN8A Alliance Logo

Loading Events

« All Events

  • This event has passed.

SCN2A & SCN8A Town Hall about PRAX-562 Trial at Boston Children’s

November 2, 2023 @ 12:00 pm 1:00 pm New York, NY

Boston Children’s Hospital is now recruiting SCN2A & SCN8A patients for the PRAX-562 study. Please join us for a virtual session with Heather Olson, MD to:

– Understand if your child is eligible for the trial
– Hear about potential benefits of the this new treatment in development for SCN2A and SCN8A
– Learn what enrolling in a clinical study at Boston Children’s Hospital looks like
– Hear why this research is important
– Ask your questions

You can learn more about the EMBOLD Study HERE

We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.