Caregiver Connect: Open Discussion & Newly Diagnosed
September 19 @ 8:00 pm – 10:00 pm EDT
A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an SCN8A dad and the scientist who identified the gene’s role in pediatric epilepsy. Whether you’re looking for strategies to navigate daily challenges or a chance to connect with others on a similar journey, we’re here to support you. These discussions are facilitated by AI-assisted language translation, so you can join in your preferred language.
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
