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Japanese SCN8A Alliance Family Meeting – 日本語で!

June 16, 2023 @ 8:00 pm - 10:00 pm EDT

地域および変種のネットワークは、ライブサポートと研究の更新のためのあなたの場所です。
SCN8Aアライアンスが主催するSCN8aネットワークは、scn8aの親であり、scn8a遺伝子と小児てんかんとの関連の発見を担当する遺伝科学者であるHammer博士と接続する機会を四半期ごとに提供しています。
これらのグループは、あなたの旅を共有し、あなたの経験に関連する質問をし、あなたの地域の地元のリソースについて議論し、最新のSCN8Aの開発につ

Connect and learn! Regional and variant networks are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer quarterly opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene’s association with pediatric epilepsy. These groups will provide you with a chance to share your journey, ask questions relevant to your experience, discuss local resources in your region, learn about the newest SCN8A developments AND connect with other families in your geographic area or families with similar variants.

https://us02web.zoom.us/meeting/register/tZIuduuoqD8pHtHDiDkRIqJQSbged_ykhVnc

Details

Date:
June 16, 2023
Time:
8:00 pm - 10:00 pm EDT

We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.