- This event has passed.
Japanese SCN8A Alliance Family Meeting – 日本語で!
June 16, 2023 @ 8:00 pm - 10:00 pm EDT
Connect and learn! Regional and variant networks are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer quarterly opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene’s association with pediatric epilepsy. These groups will provide you with a chance to share your journey, ask questions relevant to your experience, discuss local resources in your region, learn about the newest SCN8A developments AND connect with other families in your geographic area or families with similar variants.
https://us02web.zoom.us/meeting/register/tZIuduuoqD8pHtHDiDkRIqJQSbged_ykhVnc
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
