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Orlando International SCN8A Alliance Information Session and Family Hang Out!
December 2 @ 4:00 pm – 7:00 pm New York, NY
The International SCN8A Alliance will be in Orlando presenting about the work we are doing at the American Epilepsy Society meeting and holding key meetings with doctors, researchers and pharmaceutical companies to continue advocating to improve the understanding of and treatments for SCN8A.
We would like to welcome you to an event we are hosting on Saturday December 2nd so we can update you on all the SCN8A work we are doing, including a presentation on the First Global SCN8A Diagnosis & Treatment Guidelines (which will likely be published in the coming months), the International SCN8A Registry, the Global SCN8A Alliance, our latest articles on SCN8A and our work looking forward to rapidly advance SCN8A research!
We can’t wait to share some of these updates with you and then just hangout together in a relaxed environment with some food a drinks. The event location is TBD and will be based on the number of RSVPs we get.
Please let us know if you want to join us on Saturday, December 2nd roughly 4:00-7PM near the Sheraton Lake Buena Vista Resort.
If you are interested in attending, please let us know below so we can plan for the appropriate space.
Reach out with any questions to info@SCN8AAlliance.org
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.