- This event has passed.
Portuguese Speaking Family Meetings
December 3, 2022 @ 1:00 pm - 3:00 pm EST
Conecte-se e aprenda! As redes regionais e variantes são o seu lugar para suporte ao vivo e atualizações de pesquisa. As redes SCN8A, patrocinadas pela SCN8A Alliance, oferecem oportunidades trimestrais de contato com o Dr. Hammer, um pai SCN8A e o cientista genético responsável pela descoberta da associação do gene SCN8A com a epilepsia pediátrica. Esses grupos lhe darão a chance de compartilhar sua jornada, fazer perguntas relevantes à sua experiência, discutir recursos locais em sua região, aprender sobre os mais novos desenvolvimentos SCN8A E conectar-se com outras famílias em sua área geográfica ou famílias com variantes semelhantes.
Connect and learn! Regional and variant networks are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8AAlliance, offer quarterly opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene’s association with pediatric epilepsy. These groups will provide you with a chance to share your journey, ask questions relevant to your experience, discuss local resources in your region, learn about the newest SCN8A developments AND connect with other families in your geographic area or families with similar variants.
https://us02web.zoom.us/meeting/register/tZ0rd-6gqDksGtRYzRBRLC-WSpsTe3nEFYms
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.