April 1, 2023 @ 4:00 pm - 6:00 pm EDT
This is a regular space for families to come together, connect, ask questions and build community.
We will be centering these meetings around a topic based on community feedback for the issues that are important to our kids (ex: feeding, GI, school, IEPs, etc.).
Newly diagnosed with SCN8A? Not so newly diagnosed but still have questions? Want to connect with and support other SCN8A families?
Join Us!
https://us02web.zoom.us/meeting/register/tZUsf-qhpzojHNC4nDHG0q0FHAfvGG76q9Kc
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
