SCN8A Alliance – Open Topic/Themed Meeting
April 1 @ 1:00 pm - 3:00 pm EDT
This is a regular space for families to come together, connect, ask questions and build community.
We will be centering these meetings around a topic based on community feedback for the issues that are important to our kids (ex: feeding, GI, school, IEPs, etc.).
Newly diagnosed with SCN8A? Not so newly diagnosed but still have questions? Want to connect with and support other SCN8A families?