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Exploring Challenges with Behavioral & Emotional Concerns in both Loss and Gain of Function

May 25 @ 3:00 pm 5:00 pm new york

Gain of Function and Los of Function in SCN8A Discussed
Join our SCN8A network for live support and the latest research updates. Sponsored by the International SCN8A Alliance, you can talk directly with Dr. Hammer, both an SCN8A parent and the scientist who identified the SCN8A gene’s role in pediatric epilepsy. These sessions will help you understand the complex nature of SCN8A, and learn how Loss and Gain of Function affect development and treatments. This group will spend time exploring the behavioral and emotional concerns associated with SCN8A. You will be able to discuss your experiences, pose specific questions, talk about resources available in your area, get updated on SCN8A advancements, and connect with other families facing the challenges of similar genetic variants. Our meetings are powered by AI-assisted language translation so that no matter what language you speak, you can always join us to learn, connect and find support.

We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.

   

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