- This event has passed.
SCN8A Network Meeting: Severely Impacted Children
February 11, 2023 @ 1:00 pm - 3:00 pm EST
Our Severely Impacted Children meetings will primarily focus on the issues important to children who are Non-ambulatory, G/J fed, and have Global Developmental Delays.
Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene’s association with pediatric epilepsy. These groups will provide you with a chance to share your journey, ask questions relevant to your experience, discuss local resources in your region, learn about the newest SCN8A developments AND connect with other families with similar variants.
https://us02web.zoom.us/meeting/register/tZ0qcOyhqjMoGtNHmxI7bvisekeQ_u8PJPga
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
