Addressing Severe Challenges: Respiratory Issues, Urinary Concerns, Intractable Seizures, Therapies, Respite, and More
May 18 @ 3:00 pm – 5:00 pm new york
This is a dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A, including severe respiratory issues, urinary concerns, intractable seizures, and the need for therapies and respite. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of the SCN8A spectrum. Connect with Dr. Hammer and a global community that understands and supports your journey. These meetings are powered by AI-assisted language translation so that no matter what language you speak, you can always join us to learn, connect, and find support.
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
