Our Severely Impacted Children meetings will primarily focus on the issues important to children who are Non-ambulatory, G/J fed, and have Global Developmental Delays. Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent …
SCN8A Network Meeting: Severely Impacted Children Read More ยป
Learn more about how the Praxis compound for SCN8A and SCN2A - PRAX-562 - works, how you can express your interest in the study and listen in on a Fireside Chat with Brian Pfister, Vice President Global Medical Affairs at Praxis Precision Medicine and Dr. Michael Hammer. 1:00 PM ET6:00 PM - UK7:00 PM - …
SCN8A Fireside Chat with Praxis Precision Medicine Read More ยป
ๅฐๅใใใณๅค็จฎใฎใใใใฏใผใฏใฏใใฉใคใใตใใผใใจ็ ็ฉถใฎๆดๆฐใฎใใใฎใใชใใฎๅ ดๆใงใใ SCN8AใขใฉใคใขใณในใไธปๅฌใใSCN8aใใใใฏใผใฏใฏใscn8aใฎ่ฆชใงใใใscn8a้บไผๅญใจๅฐๅ ใฆใใใใจใฎ้ข้ฃใฎ็บ่ฆใๆ ๅฝใใ้บไผ็งๅญฆ่ ใงใใHammerๅๅฃซใจๆฅ็ถใใๆฉไผใๅๅๆใใจใซๆไพใใฆใใพใใ ใใใใฎใฐใซใผใใฏใใใชใใฎๆ ใๅ ฑๆใใใใชใใฎ็ต้จใซ้ข้ฃใใ่ณชๅใใใใใชใใฎๅฐๅใฎๅฐๅ ใฎใชใฝใผในใซใคใใฆ่ญฐ่ซใใๆๆฐใฎSCN8Aใฎ้็บใซใค Connect and learn! Regional and variant networks are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer quarterly opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene's association with pediatric epilepsy. These groups …
Japanese SCN8A Alliance Family Meeting – ๆฅๆฌ่ชใง! Read More ยป
Join the team from the International SCN8A Alliance - Dr. Hammer, Gabi and JayEtta - as well as SCN8A mom, researcher and Board Member Madeleine Oudin, PhD for a discussion about Infantile Spasms (IS) in SCN8A. We will share some emerging research and learnings from our Registry, talk about what infantile spasms are (and are …
Our Mild/Moderately Impacted Children meetings will primarily focus on the issues of Seizure Control, Medications, Development, and Therapies. Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for …
SCN8A Network Meeting: Mild/Moderately Impacted Children Read More ยป
Conecte-se e aprenda! As redes regionais e variantes sรฃo o seu lugar para suporte ao vivo e atualizaรงรตes de pesquisa. As redes SCN8A, patrocinadas pela SCN8A Alliance, oferecem oportunidades trimestrais de contato com o Dr. Hammer, um pai SCN8A e o cientista genรฉtico responsรกvel pela descoberta da associaรงรฃo do gene SCN8A com a epilepsia pediรกtrica. …
SCN8A Network Meeting: Portuguese Speaking Families Read More ยป
This is a regular space for families to come together, connect, ask questions and build community. Newly diagnosed with SCN8A? Not so newly diagnosed but still have questions? Want to connect with and support other SCN8A families? Join Us! https://us02web.zoom.us/meeting/register/tZAoduyqqD8tHNXWBkTuTlNUus-hZ9Zi4UuY
Join us for our series of presentations led by Dr. Michael Hammer, an SCN8A parent and geneticist who first discovered the SCN8A geneโs association with epilepsy. In these meetings, Dr. Hammer will present his new and exciting findings through his Hammer Lab research, as well as updates from the International SCN8A Registry Research Study. https://us02web.zoom.us/meeting/register/tZ0ldu2trz4uHdV4NpyVgxjM5SlP7ZiOr1kE
This is a regular space for families to come together, connect, ask questions and build community. We will be centering these meetings around a topic based on community feedback for the issues that are important to our kids (ex: feeding, GI, school, IEPs, etc.). Newly diagnosed with SCN8A? Not so newly diagnosed but still have …
Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene's association with pediatric epilepsy. These groups will provide you with a chance …
SCN8A Network Meeting: Rotating Foreign Language Read More ยป
Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene's association with pediatric epilepsy. These groups will provide you with a chance …
Connect and learn! Variant networks are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer quarterly opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A geneโs association with pediatric epilepsy. These groups will provide you with a …
SCN8A Network Meeting: Loss of Function Families and/or Behavioral & Emotional Concerns Read More ยป
