SCN8A Network Meeting: Severely Impacted Children

Our Severely Impacted Children meetings will primarily focus on the issues important to children who are Non-ambulatory, G/J fed, and have Global Developmental Delays. Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent …

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Japanese SCN8A Alliance Family Meeting – ๆ—ฅๆœฌ่ชžใง!

ๅœฐๅŸŸใŠใ‚ˆใณๅค‰็จฎใฎใƒใƒƒใƒˆใƒฏใƒผใ‚ฏใฏใ€ใƒฉใ‚คใƒ–ใ‚ตใƒใƒผใƒˆใจ็ ”็ฉถใฎๆ›ดๆ–ฐใฎใŸใ‚ใฎใ‚ใชใŸใฎๅ ดๆ‰€ใงใ™ใ€‚ SCN8Aใ‚ขใƒฉใ‚คใ‚ขใƒณใ‚นใŒไธปๅ‚ฌใ™ใ‚‹SCN8aใƒใƒƒใƒˆใƒฏใƒผใ‚ฏใฏใ€scn8aใฎ่ฆชใงใ‚ใ‚Šใ€scn8a้บไผๅญใจๅฐๅ…ใฆใ‚“ใ‹ใ‚“ใจใฎ้–ข้€ฃใฎ็™บ่ฆ‹ใ‚’ๆ‹…ๅฝ“ใ™ใ‚‹้บไผ็ง‘ๅญฆ่€…ใงใ‚ใ‚‹HammerๅšๅฃซใจๆŽฅ็ถšใ™ใ‚‹ๆฉŸไผšใ‚’ๅ››ๅŠๆœŸใ”ใจใซๆไพ›ใ—ใฆใ„ใพใ™ใ€‚ ใ“ใ‚Œใ‚‰ใฎใ‚ฐใƒซใƒผใƒ—ใฏใ€ใ‚ใชใŸใฎๆ—…ใ‚’ๅ…ฑๆœ‰ใ—ใ€ใ‚ใชใŸใฎ็ตŒ้จ“ใซ้–ข้€ฃใ™ใ‚‹่ณชๅ•ใ‚’ใ—ใ€ใ‚ใชใŸใฎๅœฐๅŸŸใฎๅœฐๅ…ƒใฎใƒชใ‚ฝใƒผใ‚นใซใคใ„ใฆ่ญฐ่ซ–ใ—ใ€ๆœ€ๆ–ฐใฎSCN8Aใฎ้–‹็™บใซใค Connect and learn! Regional and variant networks are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer quarterly opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene's association with pediatric epilepsy. These groups …

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SCN8A and Infantile Spasms

Join the team from the International SCN8A Alliance - Dr. Hammer, Gabi and JayEtta - as well as SCN8A mom, researcher and Board Member Madeleine Oudin, PhD for a discussion about Infantile Spasms (IS) in SCN8A. We will share some emerging research and learnings from our Registry, talk about what infantile spasms are (and are …

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SCN8A Network Meeting: Mild/Moderately Impacted Children

Our Mild/Moderately Impacted Children meetings will primarily focus on the issues of Seizure Control, Medications, Development, and Therapies. Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for …

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SCN8A Network Meeting: Portuguese Speaking Families

Conecte-se e aprenda! As redes regionais e variantes sรฃo o seu lugar para suporte ao vivo e atualizaรงรตes de pesquisa. As redes SCN8A, patrocinadas pela SCN8A Alliance, oferecem oportunidades trimestrais de contato com o Dr. Hammer, um pai SCN8A e o cientista genรฉtico responsรกvel pela descoberta da associaรงรฃo do gene SCN8A com a epilepsia pediรกtrica. …

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SCN8A Alliance – Dad’s Meet-Up

This is a regular space for families to come together, connect, ask questions and build community. Newly diagnosed with SCN8A? Not so newly diagnosed but still have questions? Want to connect with and support other SCN8A families? Join Us! https://us02web.zoom.us/meeting/register/tZAoduyqqD8tHNXWBkTuTlNUus-hZ9Zi4UuY

SCN8A Alliance – Dr. Hammer’s Research Update

Join us for our series of presentations led by Dr. Michael Hammer, an SCN8A parent and geneticist who first discovered the SCN8A geneโ€™s association with epilepsy. In these meetings, Dr. Hammer will present his new and exciting findings through his Hammer Lab research, as well as updates from the International SCN8A Registry Research Study. https://us02web.zoom.us/meeting/register/tZ0ldu2trz4uHdV4NpyVgxjM5SlP7ZiOr1kE

SCN8A Network Meeting: Rotating Foreign Language

Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene's association with pediatric epilepsy. These groups will provide you with a chance …

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SCN8A Network Meeting: Newly Diagnosed

Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene's association with pediatric epilepsy. These groups will provide you with a chance …

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SCN8A Network Meeting: Loss of Function Families and/or Behavioral & Emotional Concerns

Connect and learn! Variant networks are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer quarterly opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A geneโ€™s association with pediatric epilepsy. These groups will provide you with a …

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