Exploring Challenges with Behavioral & Emotional Concerns in both Loss and Gain of Function

Join our SCN8A network for live support and the latest research updates. Sponsored by the International SCN8A Alliance, you can talk directly with Dr. Hammer, both an SCN8A parent and the scientist who identified the SCN8A gene’s role in pediatric epilepsy. These sessions will help you understand the complex nature of SCN8A, and learn how […]

SCN8A Research Roadmap – What we learned and where we are headed

Join us to hear more about the recent SCN8A Research Roadmap meeting, results of pre-meeting surveys, where the global community is headed and how you can help us improve the path to better care, treatments and quality of life for those with SCN8A. Time zones are listed below (please note Sydney will be Friday morning). […]

 Navigating the Challenges of Severely Impacted Children

A dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of the SCN8A spectrum. Connect with Dr. Hammer and a global community that understands and supports your journey. […]

Support for SCN8A Caregivers – Behaviors and School/Child Care

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. During this meeting, we will convene to focus in on challenging behaviors and how to manage with schools and child care. Join to share your challenges with others who get […]

Exploring Challenges with Behavior, Autism, School, Speech, and more

Join our SCN8A family meetings for live support and the latest research updates on behavioral challenges such as LOF and mild GOF, including behaviors, school-related issues, autism, speech, and more. Sponsored by the International SCN8A Alliance, you can talk directly with Dr. Hammer, both an SCN8A parent and the scientist who identified the SCN8A gene’s […]

Transforming SCN8A Workshop #1

Want support to participate in this year's GivingTuesday campaign? Join us for one of our three Transforming SCN8A workshops. We'll guide you through the easy setup process, provide tips, and answer any questions you may have. We look forward to having a good time and empowering you to raise vital funds for SCN8A.

Transforming SCN8A Workshop #2

Want support to participate in this year's GivingTuesday campaign? Join us for one of our three Transforming SCN8A workshops. We'll guide you through the easy setup process, provide tips, and answer any questions you may have. We look forward to having a good time and empowering you to raise vital funds for SCN8A.

Transforming SCN8A Workshop #3

Want support to participate in this year's GivingTuesday campaign? Join us for one of our three Transforming SCN8A workshops. We'll guide you through the easy setup process, provide tips, and answer any questions you may have. We look forward to having a good time and empowering you to raise vital funds for SCN8A.

SCN8A Social – Los Angeles

Event Details Location:  Westin Bonaventure Lakeview Bistro - 404 S. Figueroa Street Los Angeles, CA 90071 Date: Saturday, December 7, 2024 Time:  5:30-7:30 PM

Caregiver Connect: Open Discussion & Newly Diagnosed

A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]

Addressing Severe Challenges: Respiratory Issues, Urinary Concerns, Intractable Seizures, Therapies, Respite, and More

This is a dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A, including severe respiratory issues, urinary concerns, intractable seizures, and the need for therapies and respite. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of […]

We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.