This is a dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A, including severe respiratory issues, urinary concerns, intractable seizures, and the need for therapies and respite. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of […]

A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]

Every year on International SCN8A Awareness Day, February 9th, we host a live event to celebrate where we've been over the previous year and where we're headed in the year(s) to come. With lots of mini-chats, we will discuss the State of SCN8A. Join us to hear from a lineup of doctors, researchers, caregivers, and […]

Join our SCN8A family meetings for live support and the latest research updates on behavioral challenges such as LOF and mild GOF, including behaviors, school-related issues, autism, speech, and more. Sponsored by the International SCN8A Alliance, you can talk directly with Dr. Hammer, both an SCN8A parent and the scientist who identified the SCN8A gene’s […]

A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]

9 марта мы проведем нашу первую партнерскую встречу с семьями, которая пройдет на русском языке с живым переводчиком. Мы приглашаем лиц, осуществляющих уход, присоединиться к нам, чтобы получить возможность поговорить с генетиком и отцом SCN8A, доктором Майклом Хаммером, который обнаружил, что SCN8A может вызывать эпилепсию, и ведет наш глобальный реестр. Сессию проводят послы семьи SCN8A […]

A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]

Join us for a conversation about inheritance in SCN8A. Dr. Hammer will share an update about what we are learning about inheritance in SCN8A and then you'll have the opportunity to speak with and hear from other families who have inherited cases of SCN8A in their family. This is a wonderful opportunity to listen, learn, […]

A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]

Join us for a special gathering exclusively for grandparents of children with SCN8A, led by our Co-Founder and SCN8A grandmother, JayEtta Hecker. This is a warm and welcoming space to share your unique experiences, exchange support, and connect with others who understand your journey. Whether you’re seeking advice, offering encouragement, or simply looking to connect, […]

Join the International SCN8A Alliance and FamilieSCN2A Foundation for a live informational session with Dr. Megan Abbott, pediatric neurologist at Children’s Hospital Colorado. Dr. Abbott collaborated with our organizations to launch a multidisciplinary clinic designed specifically for individuals with SCN2A and SCN8A-related disorders. This session will provide an overview of the clinic’s structure, services, and […]

Join us for an enlightening session with Dr. Hammer, the renowned geneticist behind the discovery that SCN8A can cause epilepsy. Dive deep into the latest data, ask questions, and gain a clearer understanding of SCN8A's intricacies. Be part of an inclusive community dedicated to understanding and supporting the SCN8A journey. These meetings are powered by […]