Addressing Severe Challenges: Respiratory Issues, Urinary Concerns, Intractable Seizures, Therapies, Respite, and More
This is a dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A, including severe respiratory issues, urinary concerns, intractable seizures, and the need for therapies and respite. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of […]