West USA Regional Meeting

This region meets the third Wednesday of March, June, September, and December to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!

Fact Inactivation Meeting

This group meets on the fourth Saturday of March, June, September, and December to discuss what’s new with SCN8A. Please join us to learn more and meet other families with fast inactivation! Register here!

Caregiver Meeting

Our caregivers group meets the first Saturday of January, April, July, and October to discuss what's new with SCN8A and how we can best support our children. Please join us to learn more! Register here!

Spanish Meeting

Our Spanish group meets the second Saturday of January, April, July, and October to discuss what's new with SCN8A. Please join us to learn more and meet other families! Register here!

SCN8A Dad’s Hangout

It's hard to find other dad's who understand all that you have to take on as an SCN8A dad. Grab a drink and hop online to hang out with other dads who get it. This is the inaugural meeting and if it is something people enjoy, we'll schedule them more regularly. July 15th 3pm PST/ 4pm […]

Central USA Regional Meeting

This region meets the third Wednesday of January, April, July, and October to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!

Loss of Function Meeting

Our loss of function group meets the fourth Saturday of January, April, July, and October to discuss what’s new with SCN8A. Please join us to learn more and meet other families! Register here!

United Kingdom & Ireland Regional Meeting

This region meets the first Saturday of February, May, August, and November to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!

1617 Variant Meeting

This variant meets the second Saturday of February, May, August, and November to discuss what’s new with SCN8A. Please join us to learn more and meet other families with your variant! Register here!

Eastern USA Regional Meeting

This region meets the third Wednesday of February, May, August, and November to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!

Japanese Regional Meeting

This region meets the third Friday (Saturday Japan) of February, May, August, and November to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!

1872 Variant Meeting

This variant meets the fourth Saturday of February, May, August, and November to discuss what’s new with SCN8A. Please join us to learn more and meet other families with your variant! Register here!

We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.

   

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