This group meets on the fourth Saturday of March, June, September, and December to discuss what’s new with SCN8A. Please join us to learn more and meet other families with fast inactivation! Register here!
Our caregivers group meets the first Saturday of January, April, July, and October to discuss what's new with SCN8A and how we can best support our children. Please join us to learn more! Register here!
It's hard to find other dad's who understand all that you have to take on as an SCN8A dad. Grab a drink and hop online to hang out with other dads who get it. This is the inaugural meeting and if it is something people enjoy, we'll schedule them more regularly. July 15th 3pm PST/ 4pm […]
This region meets the third Friday (Saturday Japan) of February, May, August, and November to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.