Central USA Regional Meeting
This region meets the third Wednesday of January, April, July, and October to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
Loading view.
Loss of Function Meeting
Our loss of function group meets the fourth Saturday of January, April, July, and October to discuss what’s new with SCN8A. Please join us to learn more and meet other families! Register here!
United Kingdom & Ireland Regional Meeting
This region meets the first Saturday of February, May, August, and November to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
1617 Variant Meeting
This variant meets the second Saturday of February, May, August, and November to discuss what’s new with SCN8A. Please join us to learn more and meet other families with your variant! Register here!
Eastern USA Regional Meeting
This region meets the third Wednesday of February, May, August, and November to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
Japanese Regional Meeting
This region meets the third Friday (Saturday Japan) of February, May, August, and November to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
1872 Variant Meeting
This variant meets the fourth Saturday of February, May, August, and November to discuss what’s new with SCN8A. Please join us to learn more and meet other families with your variant! Register here!
Portuguese Speaking Family Meetings
Conecte-se e aprenda! As redes regionais e variantes são o seu lugar para suporte ao vivo e atualizações de pesquisa. As redes SCN8A, patrocinadas pela SCN8A Alliance, oferecem oportunidades trimestrais de contato com o Dr. Hammer, um pai SCN8A e o cientista genético responsável pela descoberta da associação do gene SCN8A com a epilepsia pediátrica. […]
850 Variant Meeting
This variant meets the second Saturday of March, June, September, and December to discuss what’s new with SCN8A. Please join us to learn more and meet other families with your variant! Register here!
West USA Regional Meeting
This region meets the third Wednesday of March, June, September, and December to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
Fast Inactivation Meeting
This group meets on the fourth Saturday of March, June, September, and December to discuss what’s new with SCN8A. The Fast Inactivation Group is for individuals with the following variant locations: "p." number in one of the following ranges 1310-1325, 1466-1501, 1640-1654, 1760-1771. Please join us to learn more and meet other families with fast […]
Caregivers Meeting
This group continues but welcomes more families interested in a safe space to share current challenges, successes, and strategies for improving the quality of life of their children and families. https://us02web.zoom.us/meeting/register/tZAqc-2vqjkuGNYBCqGqSxr1iTMzJrxm7l79
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
