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 Open Discussions on a Range of Themes About SCN8A 

Engage in open dialogues around various SCN8A topics. Bring your questions, thoughts, and experiences to the table as we delve into different themes relevant to our families. Connect with Dr. Hammer and share your experiences with others in our diverse and inclusive community . These meetings are powered by AI-assisted language translation so that no […]

Multilingual SCN8A Gatherings

Ensuring access to everyone in our community is a critical part of our mission.  We rotate the language of these sessions, and use human medical translators to help us connect and communicate with families around the world. These meetings are also powered by AI-assisted language translation so that no matter what language you speak, you […]

Support for SCN8A Caregivers

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]

Perspectivas de SCN8A para la Comunidad Hispanohablante – SCN8A Insights for the Spanish Speaking Community

Únete a nuestra red SCN8A para la comunidad de habla hispana, realizada en español! Conéctate y haz preguntas al Dr. Hammer, obtén insights sobre la última investigación, opciones de tratamiento y estrategias para afrontar, facilitado por un traductor médico humano. Interactúa con otras familias de habla hispana, comparte experiencias y encuentra recursos especialmente adaptados a […]

Support for SCN8A Caregivers

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]

SCN8A Insights for the Dutch Community

Sluit u aan bij ons SCN8A-netwerk voor de Nederlandssprekende gemeenschap, gehouden in het Nederlands! Maak verbinding en stel vragen aan Dr. Hammer, verkrijg inzichten in het nieuwste onderzoek, behandelingsmogelijkheden en coping-strategieën, gefaciliteerd door een menselijke medische vertaler. Ga in gesprek met andere Nederlandssprekende gezinnen, deel ervaringen en vind middelen die uniek zijn afgestemd op uw […]

Inzichten over SCN8A voor de Nederlandse Gemeenschap – SCN8A Insights for the Dutch Community

Sluit u aan bij ons SCN8A-netwerk voor de Nederlandssprekende gemeenschap, gehouden in het Nederlands! Maak verbinding en stel vragen aan Dr. Hammer, verkrijg inzichten in het nieuwste onderzoek, behandelingsmogelijkheden en coping-strategieën, gefaciliteerd door een menselijke medische vertaler. Ga in gesprek met andere Nederlandssprekende gezinnen, deel ervaringen en vind middelen die uniek zijn afgestemd op uw […]

 Navigating the Challenges of Severely Impacted Children

A dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of the SCN8A spectrum. Connect with Dr. Hammer and a global community that understands and supports your journey. […]

 Navigating the Challenges of Severely Impacted Children

A dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of the SCN8A spectrum. Connect with Dr. Hammer and a global community that understands and supports your journey. […]

Support for SCN8A Caregivers

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]

Understanding Mild/Moderate SCN8A

Explore the nuances and unique challenges faced by children with mild to moderate SCN8A impacts. Connect with other families on similar journeys, gain insights from research updates, and find resources tailored to this specific form of SCN8A. Engage with Dr. Hammer and a range of other families who are here to listen and support you. […]

SCN8A Dad’s Hangout

A platform for fathers to connect, share, and learn, facilitated by Dr. Michael Hammer, the SCN8A dad and geneticist who discovered SCN8A epilepsy. Share the unique challenges and rewards of being a dad to a child with SCN8A.

We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.

   

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