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Support for SCN8A Caregivers

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]

Dr. Hammer’s SCN8A Research Update

Join us for an enlightening session with Dr. Hammer, the renowned geneticist behind the discovery that SCN8A can cause epilepsy,. Dive deep into the latest data, ask questions, and gain a clearer understanding of SCN8A's intricacies. Be part of an inclusive community dedicated to understanding and supporting the SCN8A journey. These meetings are powered by […]

Global Dissemination Kickoff – Consensus on the Diagnosis and Treatment of SCN8A

Please join us for the launch of the FIRST-EVER Global Consensus on the Diagnosis & Treatment of SCN8A, a historic milestone for the SCN8A community. This achievement addresses the crucial need identified by families and clinicians for a unified approach in caring for and treating those with SCN8A. Developed through a rigorous scientific process and […]

Open Q&A with the International SCN8A Alliance

Following the launch of the consensus on the care and treatment of those with SCN8A, we are hosting an open Q&A session with the International SCN8A Alliance team including Dr. Hammer and Executive Director, Gabi Conecker. Please come and ask your questions, share your experiences and gather with other families who understand. Time zones should […]

Challenging Behaviors in SCN2A & SCN8A

The FamilieSCN2A Foundation and the International SCN8A Alliance understand the complexities and challenges faced by individuals diagnosed with these disorders, particularly those compounded by complex medical and intellectual disabilities. We have partnered to bring you this webinar, which aims to delve deeper into behavioral challenges, seeking insights and strategies to better support individuals and their […]

Support for SCN8A Caregivers

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]

Réunion de famille SCN8A en français

Rejoignez l'Alliance Internationale SCN8A et SCN8A France, partenaires de la SCN8A Global Leaders Alliance, pour une réunion communautaire en français ! Connectez-vous et posez des questions au Dr Hammer, obtenez des informations sur les dernières recherches, les options de traitement et les stratégies d'adaptation, facilitées par un traducteur en direct. Échangez avec d'autres familles francophones, […]

Perspectivas sobre SCN8A para a Comunidade Portuguesa – SCN8A Insights for the Portuguese Community

Junte-se à nossa rede SCN8A para a comunidade de língua portuguesa, realizada em português! Conecte-se e faça perguntas ao Dr. Hammer, obtenha insights sobre as últimas pesquisas, opções de tratamento e estratégias de enfrentamento, facilitado por um tradutor médico humano. Engaje-se com outras famílias que falam português, compartilhe experiências e encontre recursos exclusivamente adequados às […]

Support for SCN8A Caregivers

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]

Exploring Challenges with Behavioral & Emotional Concerns in both Loss and Gain of Function

Join our SCN8A network for live support and the latest research updates. Sponsored by the International SCN8A Alliance, you can talk directly with Dr. Hammer, both an SCN8A parent and the scientist who identified the SCN8A gene’s role in pediatric epilepsy. These sessions will help you understand the complex nature of SCN8A, and learn how […]

Global English-speaking SCN8A Community Gatherings

Join our global English-speaking SCN8A community as we navigate the successes and challenges families face and tackle the science of SCN8A, facilitated by AI-assisted language translation. Get updates on research, connect with families across continents, and find resources tailored for a global audience.

 Navigating the Challenges of Severely Impacted Children

A dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of the SCN8A spectrum. Connect with Dr. Hammer and a global community that understands and supports your journey. […]

We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.

   

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