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Understanding Mild/Moderate SCN8A

Explore the nuances and unique challenges faced by children with mild to moderate SCN8A impacts. Connect with other families on similar journeys, gain insights from research updates, and find resources tailored to this specific form of SCN8A. Engage with Dr. Hammer and a range of other families who are here to listen and support you. […]

SCN8A Dad’s Hangout

A platform for fathers to connect, share, and learn, facilitated by Dr. Michael Hammer, the SCN8A dad and geneticist who discovered SCN8A epilepsy. Share the unique challenges and rewards of being a dad to a child with SCN8A.

Support for SCN8A Caregivers

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]

Dr. Hammer’s SCN8A Research Update

Join us for an enlightening session with Dr. Hammer, the renowned geneticist behind the discovery that SCN8A can cause epilepsy,. Dive deep into the latest data, ask questions, and gain a clearer understanding of SCN8A's intricacies. Be part of an inclusive community dedicated to understanding and supporting the SCN8A journey. These meetings are powered by […]

Multilingual SCN8A Gatherings

Ensuring access to everyone in our community is a critical part of our mission.  We rotate the language of these sessions, and use human medical translators to help us connect and communicate with families around the world. These meetings are also powered by AI-assisted language translation so that no matter what language you speak, you […]

Support for SCN8A Caregivers

A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]

Perspectivas sobre SCN8A para a Comunidade Portuguesa – SCN8A Insights for the Portuguese Community

Junte-se à nossa rede SCN8A para a comunidade de língua portuguesa, realizada em português! Conecte-se e faça perguntas ao Dr. Hammer, obtenha insights sobre as últimas pesquisas, opções de tratamento e estratégias de enfrentamento, facilitado por um tradutor médico humano. Engaje-se com outras famílias que falam português, compartilhe experiências e encontre recursos exclusivamente adequados às […]

We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.

   

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