Unisciti alla nostra rete SCN8A per la comunità di lingua italiana tenuta in italiano! Connettiti e fai domande al Dr. Hammer, ottieni approfondimenti sulle ultime ricerche, opzioni di trattamento e strategie di coping, facilitate da un traduttore medico umano. Interagisci con altre famiglie di lingua italiana, condividi esperienze e trova risorse adatte in modo unico […]
Sluit u aan bij ons SCN8A-netwerk voor de Nederlandssprekende gemeenschap, gehouden in het Nederlands! Maak verbinding en stel vragen aan Dr. Hammer, verkrijg inzichten in het nieuwste onderzoek, behandelingsmogelijkheden en coping-strategieën, gefaciliteerd door een menselijke medische vertaler. Ga in gesprek met andere Nederlandssprekende gezinnen, deel ervaringen en vind middelen die uniek zijn afgestemd op uw […]
A platform for fathers to connect, share, and learn, facilitated by Dr. Michael Hammer, the SCN8A dad and geneticist who discovered SCN8A epilepsy. Share the unique challenges and rewards of being a dad to a child with SCN8A.
A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]
Join us for an enlightening session with Dr. Hammer, the renowned geneticist behind the discovery that SCN8A can cause epilepsy,. Dive deep into the latest data, ask questions, and gain a clearer understanding of SCN8A's intricacies. Be part of an inclusive community dedicated to understanding and supporting the SCN8A journey. These meetings are powered by […]
A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]
Join our SCN8A network for live support and the latest research updates. Sponsored by the International SCN8A Alliance, you can talk directly with Dr. Hammer, both an SCN8A parent and the scientist who identified the SCN8A gene’s role in pediatric epilepsy. These sessions will help you understand the complex nature of SCN8A, and learn how […]
Join us to hear more about the recent SCN8A Research Roadmap meeting, results of pre-meeting surveys, where the global community is headed and how you can help us improve the path to better care, treatments and quality of life for those with SCN8A. Time zones are listed below (please note Sydney will be Friday morning). […]
A dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of the SCN8A spectrum. Connect with Dr. Hammer and a global community that understands and supports your journey. […]
A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. During this meeting, we will convene to focus in on challenging behaviors and how to manage with schools and child care. Join to share your challenges with others who get […]
Explore the nuances and unique challenges faced by children with mild to moderate SCN8A impacts. Connect with other families on similar journeys, gain insights from research updates, and find resources tailored to this specific form of SCN8A. Engage with Dr. Hammer and a range of other families who are here to listen and support you. […]
A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
– Keep Exploring –
IMPORTANT: While this consensus data provides new and valuable insights about best practices in the diagnosis and treatment of SCN8A, this is not medical advice. It can inform clinicians and caregivers alike in developing optimal treatment plans for each individual.
