Join us to hear more about the recent SCN8A Research Roadmap meeting, results of pre-meeting surveys, where the global community is headed and how you can help us improve the path to better care, treatments and quality of life for those with SCN8A. Time zones are listed below (please note Sydney will be Friday morning). […]
A dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of the SCN8A spectrum. Connect with Dr. Hammer and a global community that understands and supports your journey. […]
A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. During this meeting, we will convene to focus in on challenging behaviors and how to manage with schools and child care. Join to share your challenges with others who get […]
Explore the nuances and unique challenges faced by children with mild to moderate SCN8A impacts. Connect with other families on similar journeys, gain insights from research updates, and find resources tailored to this specific form of SCN8A. Engage with Dr. Hammer and a range of other families who are here to listen and support you. […]
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
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IMPORTANT: While this consensus data provides new and valuable insights about best practices in the diagnosis and treatment of SCN8A, this is not medical advice. It can inform clinicians and caregivers alike in developing optimal treatment plans for each individual.
