Our caregivers group meets the first Saturday of January, April, July, and October to discuss what's new with SCN8A and how we can best support our children. Please join us to learn more! Register here!
Our Spanish group meets the second Saturday of January, April, July, and October to discuss what's new with SCN8A. Please join us to learn more and meet other families! Register here!
It's hard to find other dad's who understand all that you have to take on as an SCN8A dad. Grab a drink and hop online to hang out with other dads who get it. This is the inaugural meeting and if it is something people enjoy, we'll schedule them more regularly. July 15th 3pm PST/ 4pm […]
This region meets the third Wednesday of January, April, July, and October to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
Our loss of function group meets the fourth Saturday of January, April, July, and October to discuss what’s new with SCN8A. Please join us to learn more and meet other families! Register here!
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
– Keep Exploring –
IMPORTANT: While this consensus data provides new and valuable insights about best practices in the diagnosis and treatment of SCN8A, this is not medical advice. It can inform clinicians and caregivers alike in developing optimal treatment plans for each individual.
