Our caregivers group meets the first Sunday of January, April, July, and October to discuss what's new with SCN8A and how we can best support our children. Please join us to learn more! Register here!
¡Bienvenida! Conéctate y aprende - las redes regionales y variantes son su lugar para recibir soporte EN VIVO y actualizaciones de investigación. Las redes SCN8A, patrocinadas por SCN8A Alliance, ofrecen oportunidades trimestrales para conectarse con el Dr. Hammer, un padre de SCN8A y el científico genético responsable del descubrimiento de la asociación del gen SCN8A […]
This region meets the third Wednesday of January, April, July, and October to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
Our loss of function group meets the fourth Saturday of January, April, July, and October to discuss what’s new with SCN8A. Please join us to learn more and meet other families! Register here!
This region meets the first Saturday of February, May, August, and November to discuss what's new with SCN8A. Please join us to learn more and meet other families in your region! Register here!
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
– Keep Exploring –
IMPORTANT: While this consensus data provides new and valuable insights about best practices in the diagnosis and treatment of SCN8A, this is not medical advice. It can inform clinicians and caregivers alike in developing optimal treatment plans for each individual.
