Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene's association with pediatric epilepsy. These groups will provide you with a chance …

SCN8A Network Meeting: International English Speaking Read More »

Join us on February 9th, International SCN8A Awareness Day, as we mark our progress since SCN8A was discovered as causing epilepsy in 2012. We will get an update on what we are learning about SCN8A and share a vision for where we are headed. Alliance co-founders will be joined by several surprise guests to mark …

2023 International SCN8A Awareness Day Event – What have we learned and where are we headed? Read More »

Our Severely Impacted Children meetings will primarily focus on the issues important to children who are Non-ambulatory, G/J fed, and have Global Developmental Delays. Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent …

SCN8A Network Meeting: Severely Impacted Children Read More »

地域および変種のネットワークは、ライブサポートと研究の更新のためのあなたの場所です。 SCN8Aアライアンスが主催するSCN8aネットワークは、scn8aの親であり、scn8a遺伝子と小児てんかんとの関連の発見を担当する遺伝科学者であるHammer博士と接続する機会を四半期ごとに提供しています。 これらのグループは、あなたの旅を共有し、あなたの経験に関連する質問をし、あなたの地域の地元のリソースについて議論し、最新のSCN8Aの開発につ Connect and learn! Regional and variant networks are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer quarterly opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for the discovery of the SCN8A gene's association with pediatric epilepsy. These groups …

Japanese SCN8A Alliance Family Meeting – 日本語で! Read More »

Our Mild/Moderately Impacted Children meetings will primarily focus on the issues of Seizure Control, Medications, Development, and Therapies. Connect and learn! Network meetings are your place for LIVE support and research updates. SCN8A networks, sponsored by the SCN8A Alliance, offer opportunities to connect with Dr. Hammer, an SCN8A parent and the Genetic Scientist responsible for …

SCN8A Network Meeting: Mild/Moderately Impacted Children Read More »