Rejoignez l'Alliance Internationale SCN8A et SCN8A France, partenaires de la SCN8A Global Leaders Alliance, pour une réunion communautaire en français ! Connectez-vous et posez des questions au Dr Hammer, obtenez des informations sur les dernières recherches, les options de traitement et les stratégies d'adaptation, facilitées par un traducteur en direct. Échangez avec d'autres familles francophones, […]
Junte-se à nossa rede SCN8A para a comunidade de língua portuguesa, realizada em português! Conecte-se e faça perguntas ao Dr. Hammer, obtenha insights sobre as últimas pesquisas, opções de tratamento e estratégias de enfrentamento, facilitado por um tradutor médico humano. Engaje-se com outras famílias que falam português, compartilhe experiências e encontre recursos exclusivamente adequados às […]
A special space for caregivers supporting those with SCN8A to find both solace and strength in a community that knows what life with SCN8A means. You can share challenges, gain insights into care techniques, and stay abreast of research and resources to help on your caregiving journey. Engage with Dr. Hammer and a global community […]
Join our global English-speaking SCN8A community as we navigate the successes and challenges families face and tackle the science of SCN8A, facilitated by AI-assisted language translation. Get updates on research, connect with families across continents, and find resources tailored for a global audience.
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
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IMPORTANT: While this consensus data provides new and valuable insights about best practices in the diagnosis and treatment of SCN8A, this is not medical advice. It can inform clinicians and caregivers alike in developing optimal treatment plans for each individual.
