Global Language Family Meeting
Language to be announced shortly.
Loading view.
Addressing Severe Challenges: Respiratory Issues, Urinary Concerns, Intractable Seizures, Therapies, Respite, and More
This is a dedicated gathering for families and caregivers of children facing the most comprehensively challenging forms of SCN8A, including severe respiratory issues, urinary concerns, intractable seizures, and the need for therapies and respite. Share stories, seek support, and gain insights into treatments, research, and coping strategies tailored for those at the sharper end of […]
Caregiver Connect: Open Discussion & Newly Diagnosed
A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]
Global Language Family Meeting
Language to be announced shortly.
Global Language Family Meeting
Language to be announced shortly.
Caregiver Connect: Open Discussion & Newly Diagnosed
A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]
Global Language Family Meeting
Language to be announced shortly.
Global Language Family Meeting
Language to be announced shortly.
Addressing Behavioral Challenges: LOF, Mild GOF, and Impacts on School, Autism, Speech, and More
Join our SCN8A family meetings for live support and the latest research updates on behavioral challenges such as LOF and mild GOF, including behaviors, school-related issues, autism, speech, and more. Sponsored by the International SCN8A Alliance, you can talk directly with Dr. Hammer, both an SCN8A parent and the scientist who identified the SCN8A gene’s […]
Caregiver Connect: Open Discussion & Newly Diagnosed
A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]
SCN8A Grandparents Meetup
Join us for a special gathering exclusively for grandparents of children with SCN8A. This is a warm and welcoming space to share your unique experiences, exchange support, and connect with others who understand your journey. Whether you’re seeking advice, offering encouragement, or simply looking to connect, this meetup is here for you. Together, we’ll celebrate […]
Caregiver Connect: Open Discussion & Newly Diagnosed
A dedicated space for parents and caregivers, including those newly navigating an SCN8A diagnosis, to find answers, practical advice, and connection. Learn what SCN8A means for your child, how to manage symptoms, and what treatment options are available. Gain insights into the latest research, hear from other families, and connect directly with Dr. Hammer, an […]
We would like to extend our thanks to Neurocrine Biosciences and Praxis Precision Medicines for their support of these meetings which bring improved quality of life to families and allows them opportunities to learn, connect, and contribute to the understanding of SCN8A.
