In The Media​

Get ready to be inspired by Gabi Conecker, a well-known advocate in the rare disease space and one of the Co-Founders of the International SCN8A Alliance. Gabi has been a driving force in the SCN8A and rare epilepsy community, juggling advocacy and caring for her son Elliott, who lives with SCN8A and a range of challenges that accompany it. In this captivating podcast episode with superstar podcaster and rare mom, Effie Parks, Gabi shares her advocacy journey and a number of the impactful initiatives she is helping lead like the International SCN8A Alliance, DEE-P Connections and The Inchstone Project. This is a fun listen, so tune in and learn a bit more about Gabi’s journey to support those with SCN8A and other Developmental and Epileptic Encephalopathies (DEEs).

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