In The Media

ONCE UPON A GENE - EPISODE 190 with Effie Parks -
The International SCN8A Alliance, The Inchstone Project and DEE-P Connections

Get ready to be inspired by Gabi Conecker, a well-known advocate in the rare disease space and one of the Co-Founders of the International SCN8A Alliance. Gabi has been a driving force in the SCN8A and rare epilepsy community, juggling advocacy and caring for her son Elliott, who lives with SCN8A and a range of challenges that accompany it. In this captivating podcast episode with superstar podcaster and rare mom, Effie Parks, Gabi shares her advocacy journey and a number of the impactful initiatives she is helping lead like the International SCN8A Alliance, DEE-P Connections and The Inchstone Project. This is a fun listen, so tune in and learn a bit more about Gabi’s journey to support those with SCN8A and other Developmental and Epileptic Encephalopathies (DEEs).

Message from Gabi: This was such a fun interview with Effie, who is truly gifted at telling a story through conversation! I hope you enjoy and please reach out if you have any questions or want to chat!

On Rare Disease Day 2023, SCN8A mom, Executive Director and Co-Founder, Gabi Conceker, did an interview to help raise awareness about SCN8A. Check it out here!

In The Media

ONCE UPON A GENE - EPISODE 190 with Effie Parks - The International SCN8A Alliance, The Inchstone Project and DEE-P Connections

Message from Gabi: This was such a fun interview with Effie, who is truly gifted at telling a story through conversation! I hope you enjoy and please reach out if you have any questions or want to chat!

ONCE UPON A GENE - EPISODE 190 with Effie Parks -
The International SCN8A Alliance, The Inchstone Project and DEE-P Connections