Requesting Parent or Sibling Kits
The International SCN8A Alliance is pleased to be able to distribute both parent and sibling kits to families with a child with SCN8A epilepsy and related disorders. As a collaborator with UCB and 9 other patient advocacy groups, we are the authorized distributor for kits to all SCN8A families.
Families must be a members of the SCN8A community.
For updates on new programming, “Like” our public SCN8A Alliance Facebook page.
Kits are currently only available for shipping to families in the U.S.
Many of the contents are available for download HERE.
Parents & Caregivers Kit
Designed by the rare epilepsy community to help parents and caregivers support their VIP siblings.
VIP Sibling Kits
Available in two age-appropriate versions, these kits are designed especially for VIP siblings to help them cope and celebrate how important they are.
Access at your fingertips to all printed components of the Parents & Caregivers Kit, VIP Sibling Kits, and more!
SCN8A Alliance Order Form for VIP Kits
Contact us if you have any questions at info@SCN8AAlliance.org