SCN8A Brain Tissue Donation Bank

Your Child Can Leave a Legacy

The loss of any loved one with SCN8A is unimaginable. We all wish there were more we could do to help end the suffering that comes with this diagnosis. We want to tell you about one incredibly important way families can leave a lasting legacy for their SCN8A child – brain tissue donation.

We are working with the Maryland Brain Bank, an NIH NeuroBioBank site, to build a brain tissue donation bank specifically for SCN8A. The precious donations in this bank would allow prestigious researchers to do cutting edge research.

To register for donation, visit the Maryland Brain Bank website.

To learn more about brain tissue donation, please watch this webinar from our sister organization, DEE-P Connections.